Rolf B. Gainer, Ph.D., Diplomate ABDA, is the Chief Executive Office at Brookhaven Hospital and the Vice President of Rehabilitation Institutes of America. Dr. Gainer has been involved in the design and operation of treatment programs since 1977.

 

 

Michael Mason is author of the book Head Cases: Stories of Brain Injury and Its Aftermath, and is a Brain Injury Projects Manager at the Neurologic Rehabilitation Institute.

Penny Rott, MS, is a brain injury case manager for the Neurologic Rehabilitation Institute at Brookhaven Hospital..

May 23, 2006, 2:08 pm

Real Life Issues

It’s never easy to tell someone that they lost a parent. Last week I was asked to inform an individual whom I’ve known for ten years that his mother had just died. The survivor is in his early fifties and his mother was in her early eighties. He had a severe brain injury fifteen years ago and over the course of time has experienced his own “touch and go” problems with his health. He is about the same age as I was when my mother died. I went to see him with a heavy heart; this is not something I ever wanted to tell anyone. But yet, it needed to be done, he needed to know, and I was the one to deliver the message.

We talked for a few moments before I told him that his mother passed away. He knew before I could get the words out. He said his mother had joined him for breakfast several days before and they enjoyed eating together at his favorite restaurant. Later in the week, he saw his mother in the hospital where she had slipped into a coma.

We talked about enjoying life in one minute and dealing with saying “goodbye” in another. He reminded me that his parents were married for over sixty years. I remembered that I usually saw his parents together and never apart.

Our conversation reached to my own experiences with the deaths of my parents. He remained strong, yet it was easy to see his sorrow and weight of the loss. He even asked me if I was “OK”. I said I was there for him and then we sat quietly for a few minutes, together, but alone with our thoughts.

Over the recent months I have spent considerable time talking with his father about future planning, health care proxy issues, and the difficult job of maintaining a network of care for a disabled family member. These are real issues that survivors must face as they age. I always appreciated the thoroughness and precision that his father brought to the job of planning for his son’s care.

My father used to tell that “we all put our pants on the same way”. I know he was right. The pain caused by the death of a parent brings all of us one step closer. What is striking is the total sameness of the experience for all of us. We really do put our pants on the same way.

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May 19, 2006, 7:59 am

Blast Injuries: Iraq Stories Online

Just as they did in Vietnam, the military is now pioneering treatment for brain injuries. Brain injuries, unfortunately, are one of the most common injuries–they occur daily–that result from IEDs (improvised explosive devices).

For a great peek into the pipeline of trauma treatment, check out the Defense and Veterans Brain Injury Center, an information rich site that gives visitors some insight into the nature of blast injuries.

If you’re curious to see the face of blast injury treatment, I invite you to look at the spectacular “Doctors of War” photojournalism series in the LA times. Prepare yourself for an emotionally gripping experience, as well as some staggering numbers.

As for myself, I’m relieved to report I’ll be home for the next week or two (cross my fingers), before I head up north in June. If you have any topics you’d like to hear about, please feel free to email me at the neuronotes email address to the right of this column.

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May 11, 2006, 3:12 pm

Big Tip: Your State Head Injury Administrator

This week I travelled to Spokane, Washington, all over Idaho, and even Montana. While in Idaho, I had the pleasure of chatting with admissions coordinator Keith Bolen of State Hospital North in Orofino, ID, about Idaho’s lack of services for brain injury survivors.

It always strikes me as peculiar what a hidden bit of information each state has: the State Head Injury Administrator. Every state has a designated individual who is supposed to know more about state programs and brain injury services, and how to guide survivors to those services.

Fortunately, you can find your state head injury administrator (SHIA) online at nashia.org. Just click on programs, then on state, then on your area. You should find a listing that includes an email address and a phone number. If your SHIA has a mailing list, ask to get on it so that you can find out everything you need to know to become an advocate for other survivors in your state.

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May 9, 2006, 3:19 pm

Back to the Basics Conference Stresses Neurobehavioral Rehabilitation

Recently, I participated in the 13th Annual Conference for Acquired Brain Injury sponsored by the Hamilton Health Sciences Center in Hamilton, Ontario. This year’s theme was “Back to Basics: The Management of Challenging Behavior in ABI”. The conference theme prevailed in most of the presentations–most of which centered on the rehabilitation of individuals with neurobehavioral problems.

Terry Page, Ph.D. offered practical, direct presentations on both days of the conference. Dr. Page’s approach to Applied Behavior Analysis is empowering for the staff and highly respectful of client rights and the need to maximize independence.

Brian Levine, Ph.D. spoke about the latest research in neuroimaging to predict recovery potential. Dr. Levine’s talk underscored a concern that many of us share in neurorehabilitation; that being to allow individuals a chance to make progress through aggressive rehabilitation and not restrict opportunities by establishing profiles for resource allocation.

The issue of developing behavioral standards was the focus of a panel discussion involving Cheryl Hartridge, Ph.D., Bruce Linder, Ph.D., Michael Mosher, Ph.D. (Cand),Stella Bester and John Davis, Ph.D. The panel represented behavioral rehabilitation accross a variety of settings in addition to their years as professionals working with a neurobehavioral population. The topic of protecting rights and promoting independence must remain central to our work.

The conference was effectively geared to professionals, front line staff, community care workers, administrators and consumers through an excellent array of concurrent sessions on both days. As representatives of NRIO, Phil Ieluzzi and I presented “Suicide in ABI: Risk Identification and Management in the Community Setting.” We enjoyed a standing room only presentation and excellent questions from the attendees.

It’s always rewarding to spend quality time in a learning environment. The Hamilton conference continues to represent the professional forum which neurobehavioral rehabilitation needs.

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May 4, 2006, 9:27 am

Gray Matters

Recently, I received an email from a survivor who has integrated her brain injury into her life. Her website is full of creative inspiration for people who may also be struggling. The following excerpt is from her bio section:

Heidi is a multitalented individual. She is a fun person to be around, has a great sense of humor and a wonderfully motivating disposition. She has undergone significantly challenging educational programs (Her Masters degree in Special Education and Pilates certification) even though life has considerably shaken her up. Before her injury, Heidi had obtained her Bachelors degree in Philosophy. How she sees it, laughter is one of nature’s most pleasurable means of acceptance and healing; she enjoys making people laugh, even regarding otherwise serious issues.

It’s always a joy to see TBI survivors moving forward through their injury, finding joy in greater independence. And it’s humbling to see them giving so much back to others. If you’re a survivor with a website, please send me your link so we can spread the word about your story.

Click here to visit graymatters4u.com

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