Rolf B. Gainer, Ph.D., Diplomate ABDA, is the Chief Executive Office at Brookhaven Hospital and the Vice President of Rehabilitation Institutes of America. Dr. Gainer has been involved in the design and operation of treatment programs since 1977.

 

 

Michael Mason is author of the book Head Cases: Stories of Brain Injury and Its Aftermath, and is a Brain Injury Projects Manager at the Neurologic Rehabilitation Institute.

Penny Rott, MS, is a brain injury case manager for the Neurologic Rehabilitation Institute at Brookhaven Hospital..

May 31, 2007, 2:03 pm

Second Chance to Live Author Drops Us a Note

The following post comes to use courtesy of Craig at SecondChanceToLive

Have a look:

At the request of a friend, I will share some of my struggles as a traumatic brain injury survivor. I do not share this information to whine or complain, but to help others who are recipients of an invisible disability. My experience is unique to my process, however I believe you can benefit from my experience. The power of identification sets us free from the shadows of despair. As I write, I use the principle of identification to guide me.

Through much of my life, I had no idea that I was a traumatic brain injury survivor, much less as a person with an invisible disability. As I have shared and alluded to in many of my posts, I internalized my despair and disappointment as a reflection of being a flawed individual. I absorbed the intolerance that I received as a quotient of being inadequate and defective. I practiced self-hate because I owned the messages given to me through ignorance. I spent many years of my life questioning the struggle of life itself. Unconsciously I believed that I deserved to be abused by people, because I did not know how to trust my judgment. I lacked self-confidence for a host of reasons, but mostly because I relied on others to validate my worth and value.

I bought into the notion that what other people thought of me was more important than what I thought about myself. Unknowingly, I attempted to overcompensate for my invisible disability through striving. I was driven to over achieve so that I might silence the inner wrangling of debilitating guilt and debilitating shame. I spent too much of my time attempting to answer, defend or explain myself to other people, because I feared being misunderstood. I sought acceptance through active participation in many different kinds of churches. Needless to say, I frequently found as much, if not more intolerance from religiously pious individuals. I also found myself in a love – hate relationship with God. These cumulative struggles — as well as other ordeals that I will not elaborate on for sake of time — motivated me to look for solutions.

So as you have read through my posts, you may have asked yourself some questions. How did the author of Second Chance to Live arrive at these conclusions? The answer is simple, but not easy. Every post that I have written has been birthed in the rooms of disappointment, discouragement, heartache, self-hate, self-sabotage, self-doubt and other menacing dark times in my life. I write from my journey as a person who has encountered many learning opportunities. I present practical solutions that have helped me and then share how I applied them to my life. These solutions gave me tools for living life on life's terms, as well as providing a map to lead me out of my perceived despondency.

My emotional catharsis began when I realized that if I did not look for solutions, I would die emotionally and spiritually, if not physically. All of the material that I share in Second Chance to Live
is from my experience, strength and hope as a person who has lived with an invisible disability. The practical solutions that I present are unique to my experience, however what I have learned can be applied to life at large. I believe that life is for living, not merely surviving.

As a person with an invisible disability, I have come to accept certain realities. Ignorance perpetuates itself like a bad virus and for some people it is a terminal disease. If I am waiting for someone else to change before I can hope to live the life I have imagined, I will be disappointed. And if nothing changes, it will remain the same. That is why I encourage my readers to get busy. So as you read my material keep asking yourself questions and then look for solutions, because you are the only one that can live your life.

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May 30, 2007, 10:51 am

Iraq's Mild Brain Injuries

Mild brain injuries don't receive much attention in the press, but the tide is turning due to the overwhelming numbers coming out of Iraq. I had the recent honor of participating in Fred Mogul's report on mild brain injury for WNYC's Morning Edition:

Troops returning from the wars in Iraq and Afghanistan face many challenges getting life back to normal — particularly those who have suffered debilitating physical injuries. But increasingly a class with mild-but-disturbing injuries is emerging. They’re soldiers who might not seem to have been injured at all, only to find out later that they’re steadily losing hearing, eyesight, memory and other brain functions.

Click here to read or listen to the report.

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May 23, 2007, 8:36 am

Landmark Lawsuit May Help Brain Injury Survivors

A group of brain injury survivors and their families are suing the state of Massachusetts because the state has failed to provide service options for them. It appears they've lobbied the state for years, and they've brought their pleas to six different governors.

"I feel isolated from the real world. I have little to no privacy. I don't want to live this way, and I can't think of anyone else who would," she said in the statement, read during a press conference in Boston.

Hutchinson, 54, is part of a class- action lawsuit filed yesterday against the state and the Patrick administration alleging that the Commonwealth has failed to provide community- based care for brain-injury patients. As a result, the plaintiffs say, thousands of severely handicapped residents face a lifetime of nursing home confinement in violation of federal law.

The lawsuit, filed in US District Court in Springfield on behalf of four plaintiffs and the Brain Injury Association of Massachusetts, continues the debate over the extent to which the government must attempt to normalize the lives of people with the most profound disabilities.

It's a sad state of affairs when citizens must sue their home state in order to get a basic level of care, but that's what healthcare in America has devolved to. Hopefully, this case will go in a direction that causes other states to open the doors for brain injury survivors everywhere.

Click here to read more.

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May 21, 2007, 9:56 am

Geo Gosling's Earnest Book on TBI Available

Geo Gosling entered an unfortunate contest in 1995. It was a battle of brute force. He was manned with a bicycle, his competitor was in a pick-up truck. Gosling lost that battle, but he's managed a small triumph with his earnestly-titled book "TBI Hell: A traumatic brain injury really sucks."

Numerous survivors have told me that the process of writing about their lives is one of the most therapeutic journey they can take. As evidenced by his book, Gosling is able to maintain a sense of humor despite the hard times–not an easy thing to do considering the catastrophe a TBI can create.

Click here to order Geo's book.

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May 17, 2007, 7:43 am

Additional 100,000 Gulf War Vets May Have Brain Injury

A disturbing new finding has made its way into the public. During the Gulf War, about 100,000 troops were exposed to low levels of Sarin gas. Sarin gas is demonstrated to be a powerful neurotoxin:

The report, to be published in the June issue of the journal NeuroToxicology, found apparent changes in the brain’s connective tissue — its so-called white matter — in soldiers exposed to the gas. The extent of the brain changes — less white matter and slightly larger brain cavities — corresponded to the extent of exposure, the study found.

Click here to read Gas May Have Harmed Troops

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May 14, 2007, 8:53 am

Advances in Vision Therapy for TBI, Stroke

Nova Vision Restoration Therapy (VRT) is a clinically-proven therapy that can help restore the vision of individuals affected by stroke or traumatic brain injury (TBI). VRT is a relatively new therapy, but the results have been impressive, giving many people a chance at regaining some of the quality of life they may have lost along with their vision:

Romano and colleagues evaluated 161 patients who underwent treatment at 16 U.S. research centers for six months. Using a special laptop and attached chin rest, patients stared at a fixed dot while various lights flashed along the border of their blind spot. They clicked a computer mouse each time they could detect the flash of light. After six months of twice daily therapy, 76 percent of patients were helped, regaining on average 5 degrees of their visual field, Romano said in an interview with Reuters. That is roughly the equivalent of a hand held at arm's length, then moved five inches to the right or left. "It allows you to read and to not bump into things," Romano said.
 
Visit the NovaVision website at www.novavision.com to learn more.

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May 3, 2007, 8:56 am

Great Blog by TBI Survivor

Craig Phillips is a TBI survivor who keeps a blog about his life:

Per my traumatic brain injury, at the age of 10, I was in a motor vehicle accident. Upon impact — the Cadillac hitting our VW Beetle — I was thrown forward from where I sat, behind my father who was driving. On my way forward, I snapped my left femur on my Dad’s bucket seat and then hit the windshield. When my head hit the windshield, I sustained an open skull fracture. The injury to my brain resulted in my remaining in a coma for 3 weeks. Upon waking from what I thought was a bad dream, I found my left leg elevated and in traction. Slowly, it became apparent that I was not merely in a bad dream. Although I am unable to remember much from that time in my life, one memory stands out. The right side of my forehead — where the fracture occurred — was depressed inward like a shallow bowl. I later learned that my right frontal lobe had been damaged, that I had sustained a severe brain contusion, and that my brain stem had been impacted.

Phillips sustained the injury in 1967–back when there were virtually no services for the brain injured. Instead of yielding to catastrophe, he faced it head on and has made his journey a contribution to the millions of others who struggle with brain injury.

Click hereto visit his blog, Second Chance to Live

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May 1, 2007, 10:05 am

Headaches May Injure the Brain

An alarming article recently appeared in Science Daily, indicating that migraine headaches may cause brain damage through oxygen deprivation:

“By combining two recently developed imaging technologies, Nedergaard’s team was able to get an unprecedented look at the events that happen in the brain of a mouse as a migraine unfolds. The team uncovered a complex, unexpected tale of supply and demand regarding blood flow and oxygen.

In short, the team found that the brain develops a voracious demand for energy as the organ attempts to restore the delicate chemical balance that is lost in the initial throes of a phenomenon known as cortical spreading depression, which is thought to underlie many migraines.”

Although most of us know what it’s like to suffer a headache, it’s far too early to worry that we may be causing significant damage. Rather, it appears the migraines may simply be a sign that we should be taking preventative measures against more serious insults such as stroke and aneurysm

Click here to read more.

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