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Lack of Facilities an Issue for Severe Brain Injury Patients
Neal Sandifer, 34, lives in a nursing home in Columbia, unable to care for himself. Once an athletic individual with a passion for hunting, Sandifer’s life dramatically changed in 2008 when he fell from a deer stand, resulting in permanent brain damage.
Nursing homes are generally not equipped to treat patients with severe brain injuries. They lack the necessary resources to handle the anger and outbursts often associated with such injuries. Despite this, many severely brain-injured patients like Sandifer require constant assistance and a controlled environment. Achieve consistent comfort with reliable fishers air conditioning maintenance.
Currently, the nursing home where Neal Sandifer resides is the closest his family can find to a suitable long-term care facility. However, he will soon be forced to leave. Sandifer and his family face an uncertain future, as there is no long-term, inpatient care facility in Mississippi for individuals with severe brain injuries.
The nursing home has notified Sandifer’s family that Neal must be removed by the end of the month. The only plan his family has is to bring him home, even though they know they can’t provide the care he truly needs.
Neal’s mother, Sara Sandifer, is confined to a wheelchair due to a brain hemorrhage she suffered years ago, and his father, Robert “Pat” Sandifer, is retired. Although a facility in Louisiana is willing to accept Neal, the cost of $600 per day is unaffordable for Robert.
“I’m retired; we had some money saved, but I’m going broke fast trying to care for my son,” Robert told Jimmie E. Gates from the Clarion Ledger.
Sandifer’s situation highlights the broader issues facing severely brain-injured patients across the country. There is a critical need for more specialized facilities and staffing solutions to care for these individuals.
Lee Jenkins, executive director of the Brain Injury Association of Mississippi, advocates for inpatient, long-term care facilities for people with traumatic brain injuries and understands the challenges involved. “Some patients with brain injuries can’t go home because no one can take care of them,” Jenkins said.
The main issue with opening such facilities is the astronomical cost of operation. According to the Brain Injury Association of America, extensive rehabilitation can cost anywhere between $600 and $8,000 per day. Additionally, these facilities require a significant increase in specialized staffing to provide the necessary care. To meet this demand, many facilities turn to staffing agencies that can supply temporary employe europeen, ensuring that they have qualified professionals available to deliver the required support.
Companies like All Medical offer staffing solutions that can help bridge this gap by providing trained professionals to support specialized care facilities. This can make a significant difference in the quality of care and the feasibility of operating such centers.
There are a few inpatient, long-term care facilities capable of caring for victims of severe brain injuries, but most patients cannot afford them. Those who can often have to be moved across states, far from their families.
This situation presents a heartbreaking dilemma for parents like Robert Sandifer. They must choose between sending their child to a distant facility that provides proper care but is financially devastating or keeping them close to home where they can’t receive the necessary treatment.
The urgent need for more specialized facilities, increased staffing, and financial support for families dealing with severe brain injuries cannot be overstated. Without these, many patients will continue to fall through the cracks, unable to receive the care they desperately need.
I am the mother of a 27 yr. old son with a tramatic brain injury from a car accident 9 years ago. For the first 6 to 7 years after the accident my son was very motivated to work out and improve as best he could. In the last 2 plus years we started noticing a change in his behavior. He began by being very consumed by other people or events. Then he started telling us that he had spoken to people and had plans with people to do things but we knew he had not made these plans. Then the stories got more constant and more out there. I read about TBI and confabulations that they can begin to experience but I have been looking for any good medical Dr. for the past 10 months that will even treat my son and know what is going on. He has had to be hospitalized 3 times in 4 months. He is put on anti-psycotic drugs that I understand do not help TBI patients with confabulations. We are desperate to find a good facility to help him.I feel like he is being mis-diagnosed over and over and not treated the way he should be to help him. Any information on this would be greatly appriciated.
I am the mother of a 27 year old that suffers from TBI also due to a car accident in 2008 when he was only 19. My son was totally non moble and also non verbal.he was NOP. His whole right side was badly contracted. For the past Three years he has had two major surgery to fix that and since he has been eating by mouth and some what verbal. My son goes to Kesslers in west orange nj. The doctors their are great and the treatment that they use with the medication are why my son is where he is now. Where other doctors though that he was going to be brain dead. Thank GOD that we went to Kesslers. I wish u the best with ur family.
There is a shortage of adequate programs and services for people with brain injuries throughout the United States. While there are excellent programs available, the capacity of these programs to accommodate the needs of recent acute brain injuries and the long-term rehabilitation needs of people living with severe brain injuries is limited. Brain injury creates many health disparities which can effect the quality of life and even life expectancy. Solving the long-term problems of people living with brain injury disability will require improving access to programs through significant changes in available funding and insurance. Medical advancements can keep people alive, but we need to have the resources available to take care of them in the years following their injuries, including as they age with brain injury disabilities.
Please let us know about your experiences with finding services.
My story is basically the same needing help for my 30 year old daughter who was the victim of a hit and run car accident , diagnosis TBI . In search long-term facility in Texas
Thank you for Sharing your story. This is indeed a crisis that is going in our country.
My brother is 38 and has been kicked out of 26 facilities because if his
Brain injury. We live in Texas and have run out of options. There are
No places that deal with brai injuries that are not private pay.
I have begun writing to senators and celebrities to bring awareness
To this issue. I am curious if you have found anything
For your son since this post was written.
Please feel free to email me. Hang in there.
Hi, my name is Susan and I have a brother that has been in quite a few nursing homes , due too his stroke causing dimentia and expressive aphasia . I am very depressed and soooo upset about the issue with my brother being 63 years old on Medicaid and the only place he is allowed too live is in a nursing home 130 miles away from me with a 1 star rating. I can’t sleep because I worry about him. This is rediculous. He should be entitled too be treated like a human being and because of money he is in a dump. My heart hurts because I can’t take care of him. If you need my support in advocating this issue, I am in!!! 100%. Please reply. God bless.
Hello My Name is Araceli i live in Houston Tx..thank you for sharing your story im sorry for the frustration and pain you are going thru.. I have a sister that suffered a brain injury 15 yrs ago from a motorcycle accident she is now 41…she has gone thru so much and been in several nursing homes far away from home…it is very frustrating to me that Houston is a very large city and does not have a facility that can offer the care that my sister and any brain injury person needs. she is now in a facility about 100 miles away from home it took me a long time to get her there the facility is not the best but they do care for her very good and is equipped to take care of patients that suffer from brain injuy, dimentia and other mental disorders. It is also sad that they can’t get good benefits my sister has been suffering problems with her teeth that now need to come out and insurance won’t pay for it…for the reason that ifs not a medical emergency makes no sense to me she has been on pain meds and antibiotic for over a year…i also feel useless and very sad that i can’t do much for her.
there is a new program called star plus medicaid. if you can find a dentist outside the nursing facility that takes the star plus program that she is on then you can take her to that dentist.
Araceli,
Would you tell me the name of the facility that your sister was/is in? My son is 31 and suffered an anoxic brain injury fro a drug overdose almost 3 years ago. We did the rehabs and is currently in a nursing home that is not by any means equipped to care for a brain injury. He is being discharged from it with in the next 30 days for his outbursts/behavior. We are located in the DFW area of Texas and are in desperate need of at least an adequate place for him. Thank you for any information and help that anyone can give us.
It has been 2 years since your post, Did you find any solution? We are in the same situation. We need to find a place for my brother in law but we have no money.
Thank you for any help. Jackie
Has your brother been in assisted living in Texas, or brain injury rehab? I’m looking for a place for my husband. You are correct, thrre really isn’t anything once they’ve decided intense rehabilitation is no longer viable
Elizabeth,
I have a sister in law that is 39 years old and has TBI from an auto accident on 4/23/2011.
She is in a nursing home now in Clinton, MS but at least 3 times a week they threaten to kick her out. We are searching for a solution for this situation but coming up with nothing This is literally killing my mother in law who is not well, she is on oxygen 24/7 because of COPD and weighs maybe 75 pounds. PLEASE contact me if you have found any help for your brother. We live in Mississippi and are open to moving out of state if we could find a facility to help our Darcy.
Prayers for your brother and family I am trying to make any connections possible and would love to hear from you!
I am the Mother of a 24 yr. old whose accident was in 2009, because of a drunk driver. He was 18 at the time of his accident, which left him unable to walk, talk or eat, but understands everything going on around him. Trapped in his own world, depending on everyone around him to care for him. At the age of 21 he was down to 96lbs in a nursing home in Bossier City, La and knocking on death’s door. I found a facility in Iowa that would take Zach. It is a one of the kind facility and we moved from La. to Iowa lock stock and barrel so that Zach could have the proper care. I know not everyone is able to do as we did, but we long to be back home, or closer at least. I have searched and searched, most places are private pay, workman’s comp. Or the TBI patient has to be able to assist, no feeding tube. Zach can not assist. I had one place in La south of us, tell us they would take him, but he had a feeding tube. found another place outside of Austin, Tx, but Zach could not use his hands so they would not take him. How very sad that these place will not take some such as our young loved ones who suffer with a TBI and need the SNF long term care, but have to be placed in a nursing home where the care is horrible. I almost lost my son because of their negligence of not feeding him, and probably were not giving him his meds as well. I have wanted to start a viral video to reach out to build a facility that would house more tbi’s such as my son, but no one wants to help. You either have to be rich or famous to get noticed for something such as this. what a shame. I am thankful for the place in Iowa, but still searching and praying for a place closer to home.
My son is 53 now. he has TBI from a motorcycle accident. This happened eight years ago. He has lived on his own all this time. The last two years he became totally different. No bathing no changing clothes a real danger walking to the store sometimes 8 times a day. Just lots of behavior changes, He has never been medicated since coming home/. He is now in a nursing home. It of course is not working. They sent him for an evaluation he is coming back tomorrow.
No one in this family can take care of him. Just so sad there are so many people like him Now so many soldiers coming home with TBI. God help them all.
So sad that we take care of so many people in other countries but cannot take care of our own . Same ole same ole..
Hello My Name is Araceli i live in Houston Tx..thank you for sharing your story im sorry for the frustration and pain you are going thru.. I have a sister that suffered a brain injury 15 yrs ago from a motorcycle accident she is now 41…she has gone thru so much and been in several nursing homes far away from home…it is very frustrating to me that Houston is a very large city and does not have a facility that can offer the care that my sister and any brain injury person needs. she is now in a facility about 100 miles away from home it took me a long time to get her there the facility is not the best but they do care for her very good and is equipped to take care of patients that suffer from brain injuy, dimentia and other mental disorders. It is also sad that they can’t get good benefits my sister has been suffering problems with her teeth that now need to come out and insurance won’t pay for it…for the reason that ifs not a medical emergency makes no sense to me she has been on pain meds and antibiotic for over a year…i also feel useless and very sad that i can’t do much for her.
COuld you please tell me the facility you found for your family member? We are outside of Ft Worth and our 31 year old son had a drug overdose 2 1/2 years ago and has a severe anoxic brain injury. His outbursts are getting worse and he currently lives in a nursing home, which is not a good fit for him, but it was our only option. We are not able to care for him at home and are needing to find a neurological nursing home/long term care for him. Any help or information would be great. We are willing to explore outside o.f Texas as well
I realize your post is two years old. Wondering if things have gotten better. My son was involved in an auto accident sept 2015. I’m having the same problem, no place will accept him. He is bedridden, non verbal and on a feeding tube. He’s 29. He was recently evicted from his AFH because they can no longer care for him. No facility will take him because of his age or because he can’t participate. Very frustrating. We live in Washington state and there are no facilities available here. If anyone has info on anything in this state please let me know. Thank you!
I am truly speechless at the idea that our loved ones are being neglected and not cared for properly , due too Quote , unQuote , NO MONEY. We live in the United States of America and our health system is such a joke that it literally makes me sick too my stomach. We need too fight together and get people more aware of the terrible crisis we are in. But we need too do it together. Please reply if anyone is interested. God bless .
Hi name Patrick SR my son Patrick Jr has Tbi n he already before the accident had psychotic episode now he has Tbi he has gotten worse with the outside world but with me he’s OK it just I don’t have the financial stability n I don’t want him go to a home he’s has been though so much he was n behavior facilities off n on his entire life n on top of that we lost his his sister n 2014 due to a drowning accident can someone help me some kind of way thanks n be blessed
My son Jeremy 25yrs old has a TBI & behavioral issues. He was in a car accident at 16yrs old. It’s been differcult caring for him at this time. He was accepted for long term care but finding a facility that deals with his TBI has been very differcult and I don’the have the kind of money they want for private pay. Why can’take there be more help.
My son is 18 and has a TBI from a car accident on May 1, 2017. We live in Pensacola, FL. He isn’t responsive enough to go to a place like the Brook’s Center in Jacksonville FL. Don’t know if we can care for him at home, not sure what to do. Help
same situation, any help out there in Texas?
It’ll be three years this July that our 20yr old daughter passed away from a traumatic brain injury. I feel such compassion towards those who live with TBI. It is hard to believe there are not many facilities that are available let alone be affordable. It makes me feel so sad. I can’t help but think of a resolution for this like raising awareness and funding these desperately needed services! To me it’s outrageous. My heart is extending out to all of you. 💜